New things....

We did our first Buddy Walk on Saturday. The Buddy Walk is a walk done is many cities across America to raise funds and awareness for Down syndrome. It was a lot of fun. I was not planning on doing it this year. I take the "one day I will get on that, Griffin is young we have time" approach when it comes to it, but I was invited by a friend who I had never "met" before. We had just been connected through friends by email. Anyways she was walking with a team for her boy and I just thought why not?

It was a lot of fun. I felt empowered and inspired and I hope I can organize a team for us next year.

Griffin has his first evaluation with the School District tomorrow morning. I have met so many different moms with different stories about the school system and their experiences with it all. I do not know yet at all what we will do, just that we will try to do what we think is best for our little Griffin.

Sometimes I feel like such a child when trying to navigate my way through all of these decisions for Griffin, which therapy, which play groups, which events, how much is to much, what does he need, what do we work on, what school do we go to....its so hard to know what to do. But I do believe in myself, that I will grow through this and hopefully help grow a strong, healthy, happy, well developed boy. Think of me though, when you do your thoughts...

And tomorrow we are celebrating Griffin's 2nd Heart Birthday. On November 10 it will be his 2nd anniversary since his open heart surgery. What a life.

And in case you were wondering....Griffin loves to stand! His first place to go to when we get into the house is right over to that chair to stand and walk around it. Then when he climbs into it, he is a lot of times standing in it either facing outwards or inwards toward the chair.

The littlest changes with him I notice. Like this year when he gets a congested nose and he coughs to clear it out, his cough is so much stronger this year than it was last year. And like his little leg muscles getting slightly stronger.

I will say it over and over again...he is like a precious rare jewel that I am blessed to be able to experience.

I truly think he is amazing.