Our life with an extra chromosome....

September 20, 2010

In case you were wondering.....

where we have been and what we have been up to?

At the beginning of July Griffin's behavior started to change a little. I didn't think anything of it at first, but after about a month of on going moaning and fussiness, I decided we should go to the pedi.

Well he had a double ear infection and a sore throat! I felt so bad I was in tears. He could of had that for a month. It was so weird though, he never ran a fever, his sleep patterns never changed, and his eating habits didn't change either. He just slowly was losing his energy and desire to play.

Through the antibiotics we went and his behavior stayed the same :( So back to the pedi! All this time the fear of a more serious sickness is lurking in my mind. Our pedi ran a bunch of blood work, which all came back normal, thank goodness, and now we are in the process of visiting a bunch of different specialist, just to make sure we can rule anything out that we can think of. Last week we went to see a Hematologist, with the Cancer department at Texas Children's, all was normal. Tomorrow we are seeing an ENT. And the following week a GI doc, a pediatric dentist, and a dermatologist.

Whew! appointments, appointments.....

Last week I also took Griffin to see my functional medicine, homeopathic nutritionist to see what he thought. And by far he has made the most sense, and it seems he has had a real lead on what might be going on with Griffin. He thinks that he most likely has a glutton intolerance, and that his gut is probably in real bad shape, which means his immune system is in real bad shape as well. We mailed off a DNA stool test today that he ordered and we are waiting three weeks to recieve results. And then we will now more about what is going on inside our little sweetie.

So to be completely honest, this part of motherhood is not fun for me. I tend to look at others around me with jealousy and longing for the fun things I see them doing. I am constantly reminding myself, that I am creating a false illusion in my head. All of us mamas, have the not fun part of it sometimes.

I do have a choice to think differently. To accept with gracious, excited, accepting, loving arms that with which we have. I have a choice to not throw a fit when things don't go exactly my way. I have the choice to take a big breath and muster up the strength and courage to handle this.

It really isn't that bad. It really is really good. It's may not be my plan, and that I have to let go of and find security in.

So anyone who stumbles upon reading this, send me a prayer for these things. :)





Such a sweetie :)





And behold, Griffin's bear crawl!

Matt calls him our little Mowgli ( like from the jungle book). I guess he is carrying on the tradition, my sister calls me Mowgli, because as a child, I resembled the character...you know I was skinny, tan, with dark stringy hair ;)





2 comments:

AllyValdez said...

I love you! I miss little Griffin, he is getting so big and is still so adorable. I miss our times when he would wake up from his nap and be really cuddly:) I'm praying for you.

Also...so proud of his bear crawl!!!

Janine said...

I can't believe how much bigger Griffin looks - he must have had an enormous growth spurt lately while you have been away. Still very cute though and love the bear crawl!!

I hope all goes well with the tests, my thoughts and prayers are with you. Janine xxx